<\/p>\n
At first, I thought the best way to write this post would be to share my perspective as a caregiver. One who is the core of the support system for a childhood cancer survivor, but then it hit me to save that for another time. Instead, I need to focus on the elements that matter the most according to my conversations with Joey. It keeps resonating with me how I always return to my precious boy. My muse in life and this journey I continue on. So, short, sweet and to the point is what this latest installment will be. Here are ingredients for a mixture to a solid, substantial, and tangible support system.<\/p>\n
\n\u2022 Start each day listening to what your child has to say \u2013 let them be the barometer. No one truly knows how they feel but them.
\n\u2022 Make everyday a fun day \u2013 filled with laughter. Even if it is just one thing or moment, make the most of it.
\n\u2022 Get out and about whenever they are up to it. Return to their favorite places until they say stop.
\n\u2022 Travel.
\n\u2022 Take loads of pictures.
\n\u2022 Include others, friends, family, classmates, neighbors, strangers, doctors, nurses, counselors \u2013 you see where this is going. The very nature of an effective support system requires \u2018the village\u2019 to engage in life. Let it emanate from the core out in an explosive rainbow that hovers over everything.
\n\u2022 Encourage hobbies and activities they have an inkling of interest in. Whether it is just for a day or more, at least they would have a chance to know if it is for them or not.
\n\u2022 Let them make decisions on as much in their daily routine as possible \u2013 what they want to eat, when they want to nap or go to sleep, what they want to wear. Cultivate the \u2018be in the moment\u2019 so they know life is important and they have some control of it.
\n\u2022 Let there always be peace and calm.
\n\u2022 Let them try new things \u2013 Of course, it has to be safe and they need to know their limits.
\n\u2022 Indulge them \u2013 even when others say you are spoiling them. Remember, you don\u2019t know how long they will be with you. This is the living life to the fullest. From the outside it may appear to be spoiling, but it is not.
\n\u2022 Be honest with your emotions. However, be careful in the weak moments, because you are their strength. Although, they don\u2019t realize how much of a strength they are to you. It is the ultimate symbiotic relationship outside the womb.
\n\u2022 Respect their wishes.
\n\u2022 Celebrate them \u2013 everything they do.
\n\u2022 Encourage them.
\n\u2022 Trust them.
\n\u2022 Advocate for them.
\n\u2022 Love them unconditionally. Really, LOVE THEM UNCONDITIONALLY.<\/p>\n
\nI miss you Joey\u2026<\/p>\n","protected":false},"excerpt":{"rendered":"
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